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Worster Drought Syndrome Support Group
Worster Drought Syndrome Support Group Title

The name for the newsletter came about from a discussion at the first committee meeting about the newsletter and what to call it. With a flash of inspiration Julie Glass thought up "W.O.R.D.S" which is the first three letters of Worster, the "D" of Drought and the "S" of Syndrome. "WORDS" seems to be very apt as after all, words are what we want from our children.

Newsletters

Issue 34 - January 2015

New committee members - A weekend away - Christmas cards

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PDF PDF (1.8 MB)

Issue 33 - October 2014

Questions and Answers on Genetics, Epilepsy and Brain Scans, Speech Language and Feeding Issues and Diagnosis. Reports on the Family Day and Fundraising news.

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PDF PDF (1.2 MB)

Issue 32 - April 2014

Family Day Agenda at Thames Valley Adventure Playground

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PDF PDF (1.7 MB)

Issue 31 - December 2013

Member memories, Out and About - Your stories about going on holiday, A New Research Project.

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PDF PDF (2 MB)

Issue 30 - April 2013

Books we love, Family Day, Money Matters, Universal Credit, Give as You Live

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PDF PDF (1.2 MB)

Issue 29 - December 2012

Money Matters: A guide to Personal Independance Payment Member Spotlight Family Day plans

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PDF PDF (1.8 MB)

Issue 28 - August 2012

Family Day Feature: Singing Hands, Feedback, Celebrations, I Can, MyChoice Pad, Some food for thought, Fabulous Fundraising

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PDF PDF
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Issue 27 - March 2012

Message from the Chair, Family Day Agenda, WDSSG on Facebook, MyChoidPad iPad app, Fundraising news - Just Walk 2012

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PDF PDF
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Issue 26 - May 2011

Family Day, Joy of Sound, Jugglers - Doug and Thom, Hello - The National Year of Communication, Ice-breaker Discussion Groups, Money Matters

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Issue 25 - December 2010

From the Chair, Member Profile: Bethany Woods, My Pregnancy and WDS, Money Matters

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PDF PDF (1.9 MB)

Issue 24 - February 2010

Family Day Feature, Fabulous Fundraising, From the Chair

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PDF PDF
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Issue 23 - April 2010

From the Chair - Where are we? Childrens Dental Care, Family Day, Singing Hands, Money Matters.

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PDF PDF (1.4 MB)

Issue 22 - January 2010

Introducing the new committee, No Voice - No Choice, Family Day, Members Links - A Day in London, Useful web links.

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PDF PDF (1 MB)

Issue 21 - September 2009

More volunteers please!, What are support plans and how they can help you.

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PDF PDF (723.2 KB)

Issue 20 - March 2007

Advice on preparing a transition plan. If you are aged 13 and above and have an Education Statement then by law it is your right to a transition plan. Connor tells us his story in his own words. Jaqueline Leech describes Chrisophers journey of finding suitable education support.New on the next upcoming Family Day and a proposed timetable. Thomas visits the Orthodontist.

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PDF PDF (682.9 KB)

Issue 19 - October 2006

Information on Positive Aspects – a newsletter for anyone with an interest in any disability. Jack Fullerton’s story. Information about BDF Newlife – a charity focussing on inborn conditions.

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PDF PDF (628.3 KB)

Issue 18 - February 2006

A round-up of the committee members and a report from the group's National Contact with statistics about the spread of families around the country. An introduction to the new web forum for the group and an article from John and Vanessa about their son Martin and his future after college.

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PDF PDF (2.4 MB)

Issue 17 - August 2005

Report on the 2005 AGM/Fun Day at Coram's Field with a big thanks to those who helped make it happen. Theres a transcript of the Q&A session with Professor Brian Neville, Maria Clark and Nicola Jolleff. Finally there is information on Person Centred Planning and Circles of Support and the results of the questionaire on drooling.

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PDF PDF (3.1 MB)

Issue 16 - April 2005

Details on the current committee and the minutes from the AGM at London Zoo 2004. Mark Mayer tells his story of growing up with WDS and details of the upcoming AGM at Coram Fields.

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PDF PDF (89.5 KB)

Issue 15 - October 2004

Family Day 2004 at London Zoo report and answers to the Q&A session held there. News on the first group Professional Day organised by Professor Neville and the National Contact's report for 2003 - 2004. An article on Elliot and the systems he uses for communication.

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PDF PDF (235.2 KB)

Issue 14 - April 2004

Preparations for the Family Fun Day at London Zoo and fundraising news. Useful links and resources including the Family Trust and Special Abilities Ltd.

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PDF PDF (168.1 KB)

Issue 13 - September 2003

News on the recently held AGM/Teddy Bears Picnic and an article by the Sibling Support Project which informs parents and carers on a sibling's point of view. Donna describes her experiences of having two children with WDS - Jake and Ruby.

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PDF PDF (166.1 KB)

Issue 12 - June 2003

Feedback on the Flora Light Challenge and money raised for the group. Details on a charity providing customised bikes for children and an article by Sheena Reilly on why children with WDS have difficulty eating and drinking.

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PDF PDF (89.4 KB)

Issue 11 - January 2003

Useful links and resources and the agenda for the next Family Day and AGM at Stourbridge. The personal journey of Zachary and a message from Contact a Family.

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PDF PDF (69.6 KB)

Issue 10 - August 2002

Report on the Fun Day at London Zoo and the accompanying Question and Answer session. A research update by Dr Maria Clark and an introduction to all the committee. The story of Stian from Norway.

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PDF PDF (144.6 KB)

Issue 9 - February 2002

Contact a Family launches a phone helpline and news from New Zealand. Arrangements for Family Day 2003 at London Zoo.

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PDF PDF (227.6 KB)

Issue 8 - June 2001

News on a party for children who took part in the research at Great Ormond Street. Judith Melunsky tells how diet might be effecting her son Sam. Registering for Charity status and what that would mean for the group. Elliot's story.

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PDF PDF (937.7 KB)

Issue 7 - April 2001

Thomas' story continues. Symptons of Attention Deficit Hyperactivity Disorder and a report from the parents of a child with WDS in New Zealand. Information on benefits.

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PDF PDF (56.5 KB)

Issue 6 - February 2001

Andrew and Karen Hinks continue Thomas' Story. An extract from a review of 47 cases of children with WDS.

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PDF PDF (91.1 KB)

Issue 5 - July 2000

Dolphin Human Therapy and a report from the National Contact. Andrew and Karen Hinks tell of their experiences bringing up Thomas.

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Issue 4 - November 1999

Launch of the online Contact A Family Directory and arrangements for the next Family Day in October. A report from the Rare Disorders Alliance-UK.

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PDF PDF (22.7 KB)

Issue 3 - November 1999

Report on the Family Day and the new logo chosen for the group. Living with an AAC user from a parent's perspective.

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PDF PDF (25.2 KB)

Issue 2 - October 1998

WDS on the World Wide Web for the first time and a report from the Rare Disorders Alliance UK.

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Issue 1 - May 1998

The very first newsletter. An introduction to who's on the committee, and where the acronym WORDS comes from.

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